Thanks to Jennifer for carrying the blog while I procrastinated. I do have a partial excuse. I was in Denmark for a few days at the Usher Syndrome Working Group put on by Sense in conjunction with the Acquired Deaf Blindness Network conference.
This was my first trip to Denmark. In fact, if I were to list the places I never expected to visit Denmark would have been just above Romania on the list. Aalborg is the fourth largest city in Denmark which has about 6 million people in it. That’s about the size of my home state of Massachusetts. The fourth largest city in Massachusetts is Lowell which we in the area not so lovingly call Hole. Let’s say my expectations for Denmark were low.
Well, it was wonderful. Nice people, long history, beautiful architecture, and terrific pedestrian friendly outdoor shopping. It was chilly (as one might expect) and I couldn’t help but think of the holidays as I walked the streets even though it had just turned October. Most commute by bicycle even with the chill so on a Sunday morning with most sleeping in and only a few bikers around, Aalborg might be the quietest place on earth. An absolutely lovely city.
Probably most valuable, as is usually the case with these things, was the opportunity to network. I was able to connect with people from all over Europe (Bill and I were the only two people from the US) and from as far away as Australia (and I thought my flight was long). This networking is already paying dividends as we were able to at least start a global dialogue on the need for an Usher syndrome registry (a posting for another day) which I doubt gets started without the study groupUsher Working Group.
Thanks to the good folks at Sense for pulling it together. Marilyn Kilsby (who’s retiring) and Tamsin Wengraf (who is not) did a terrific job. It was well worth the trip and I look forward to doing it again in two years